Integrated, reliable and cloud-based personal health record: A scoping review
📝 Abstract
Personal Health Records (PHR) emerge as an alternative to integrate patient’s health information to give a global view of patients’ status. However, integration is not a trivial feature when dealing with a variety electronic health systems from healthcare centers. Access to PHR sensitive information must comply with privacy policies defined by the patient. Architecture PHR design should be in accordance to these, and take advantage of nowadays technology. Cloud computing is a current technology that provides scalability, ubiquity, and elasticity features. This paper presents a scoping review related to PHR systems that achieve three characteristics: integrated, reliable and cloud-based. We found 101 articles that addressed those characteristics. We identified four main research topics: proposal/developed systems, PHR recommendations for development, system integration and standards, and security and privacy. Integration is tackled with HL7 CDA standard. Information reliability is based in ABE security-privacy mechanism. Cloud-based technology access is achieved via SOA.
💡 Analysis
Personal Health Records (PHR) emerge as an alternative to integrate patient’s health information to give a global view of patients’ status. However, integration is not a trivial feature when dealing with a variety electronic health systems from healthcare centers. Access to PHR sensitive information must comply with privacy policies defined by the patient. Architecture PHR design should be in accordance to these, and take advantage of nowadays technology. Cloud computing is a current technology that provides scalability, ubiquity, and elasticity features. This paper presents a scoping review related to PHR systems that achieve three characteristics: integrated, reliable and cloud-based. We found 101 articles that addressed those characteristics. We identified four main research topics: proposal/developed systems, PHR recommendations for development, system integration and standards, and security and privacy. Integration is tackled with HL7 CDA standard. Information reliability is based in ABE security-privacy mechanism. Cloud-based technology access is achieved via SOA.
📄 Content
Health Informatics - An International Journal (HIIJ) Vol.5, No.2/3, August 2016
DOI: 10.5121/hiij.2016.5301 1
INTEGRATED, RELIABLE AND CLOUD-BASED PERSONAL HEALTH RECORD: A SCOPING REVIEW
Jesús Romero,Pablo López, José Luis Vázquez Noguera, Cristian Cappo, Diego P. Pinto-Roa and Cynthia Villalba
Facultad Politécnica, Universidad Nacional de Asunción, Asunción, Paraguay
ABSTRACT
Personal Health Records (PHR) emerge as an alternative to integrate patient’s health information to give a global view of patients’ status. However, integration is not a trivial feature when dealing with a variety electronic health systems from healthcare centers. Access to PHR sensitive information must comply with privacy policies defined by the patient. Architecture PHR design should be in accordance to these, and take advantage of nowadays technology. Cloud computing is a current technology that provides scalability, ubiquity, and elasticity features. This paper presents a scoping review related to PHR systems that achieve three characteristics: integrated, reliable and cloud-based. We found 101 articles that addressed thosecharacteristics. We identified four main research topics: proposal/developed systems, PHR recommendations for development, system integration and standards, and security and privacy. Integration is tackled with HL7 CDA standard. Information reliability is based in ABE security-privacy mechanism. Cloud-based technology access is achieved via SOA.
KEYWORDS
Personal Health Record, Electronic Health Record, Integration, Privacy, Cloud Computing.
- INTRODUCTION
Nowadays healthcare delivery model is changing from institution-centered to a more patient- centered model[1]. The past fragmented patient health information [2] is changing to patient- centered that enables patients to store and access to their health information ubiquitously in a personal health record (PHR) [1].PHR is defined as a set of computer-based tools that allow people to access and coordinate their lifelong health information and make appropriate parts of it available to those who need it[3,4]. There is not agreement or standard on what information a PHR should store[5]. Some shared information supported by PHRs are problem lists, procedures, major illnesses, provider lists, allergy data, home-monitored data, family history, social history and lifestyle, immunizations, medications and laboratory tests[6].
When patients assist to different healthcare centers, their health information remains distributed across the healthcare centers visited. An integrated health record will provide a global and complete view of a patient health state that can lead to a better decision support by physicians during consultation, or even in emergency situations[7].
Cloud computing is a model for enabling ubiquitous and on-demand access to a shared pool of services [8]. Ubiquitous access to information not only benefits to patients but also, to healthcare professionals. Due to the high level of mobility physicians experience, ubiquitous access to relevant and timely patient data would help to make critical care decisions [9], even save lives Health Informatics - An International Journal (HIIJ) Vol.5, No.2/3, August 2016 2
[7].Ubiquity ease access to patient records, it could lead to privacy issues and unauthorized access.
PHR stores sensitive patient health information, therefore, access to PHR data must comply to privacy policies defined by the patient. In this work, we use the term reliable to express the accomplishment of this privacy policies. Privacy is recognized as the most sensitive aspect of e- health record systems [10] and must be achieved through an appropriate mechanism.
Security and privacy of health data are one of the major concerns in e-health. Due that Cloud Server Provider generally is a third party component, health data should be securely stored to protect the privacy. Cloud servers are considered to be semi-trusted, because they will not actively try to get the information stored, but they make for example traffic analysis, which may expose data. Solutions in the literature include encryption of data before outsourcing to cloud, access control, and party identifications to valid who is getting access.
Our scoping review question is: What are the current implemented or proposed PHR systems that achieve next characteristics: integrated, reliable and cloud-based?
The term integrated is referred to unified information that can be shared to authorized healthcare stakeholders (e.g., physicians, nurses, medical organizations).
PHR systems store sensitive patient information that could help save lives when used in emergency situations. Because of this, patient’s information should always be consistent to be reliable health stakeholders.
This content is AI-processed based on ArXiv data.